Tuesday, May 10, 2016

Biden calls for open-data research; Politico, 5/10/16

David Pittman, Politico; Biden calls for open-data research:
Vice President Joe Biden issued some of his strongest words yet in support of sharing clinical and research data, in remarks to data scientists Monday at Health Datapalooza. He said science was at an inflection point, with the ease of genomic sequencing, massive increases in computing power and digitization of health records. “You told me that this is the way we can make great progress, by sharing more data, breaking down the silos,” Biden told a standing-room only crowd in the ballroom of the Grand Hyatt. “Imagine what we could, you could do to help in the fight against cancer if you had access to millions of cancer pathologies, genomic sequences, family histories and treatment outcomes.”
Calls for a national research database:
The country needs a way to share and make public underlying data from medical research, Biden said, a one point criticizing the New Journal of Medicine editor for saying such policy would breed “data parasites.”
Flying records cross country:
The Biden family had to literally fly Beau’s medical records to Houston’s MD Anderson Cancer Center because EHR systems couldn’t talk to each out. And this was the vice president’s son. “We spent $35 billion to avoid that kind of thing from happening.”"

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