Simantini Dey, News18; Free Access to Intellectual Property is Crucial in Mitigating The COVID-19 Pandemic
"Furthermore, sharing intellectual property among members of academia is also important, so that the invention of a working vaccine can be accelerated, and more can be discovered about this potent virus.
To ensure such co-operation, a group of scientists, lawyers, entrepreneurs and individuals have come together and started the 'Open COVID pledge' initiative. The organisations, institutions and universities who take the 'Open COVID Pledge' will voluntarily make the commitment of sharing their Intellectual Property related to COVID-19, thereby reducing information barrier.
So far, Intel, Mozilla and Creative Commons have publically taken the Open COVID pledge. Harvard, MIT and Stanford have also agreed to this initiative. The University of Utah (Centre for Law and Biological Sciences), and Montreal Neurological Institute-Hospital are among some of the other institutions that have endorsed the pledge.
The current global healthcare crisis has brought to sharp focus the need to review patent laws of pharmaceutical products and how it should be reframed in case of a pandemic, or epidemic in future."
Issues and developments related to IP, AI, and OM, examined in the IP and tech ethics graduate courses I teach at the University of Pittsburgh School of Computing and Information. My Bloomsbury book "Ethics, Information, and Technology", coming in Summer 2025, includes major chapters on IP, AI, OM, and other emerging technologies (IoT, drones, robots, autonomous vehicles, VR/AR). Kip Currier, PhD, JD
Showing posts with label public health. Show all posts
Showing posts with label public health. Show all posts
Thursday, April 9, 2020
Friday, March 27, 2020
Over 24,000 coronavirus research papers are now available in one place; MIT Technology Review, March 16, 2020
Karen Hao, MIT Technology Review; Over 24,000 coronavirus research papers are now available in one place
"The news: Today researchers collaborating across several organizations released the Covid-19 Open Research Dataset (CORD-19), which includes over 24,000 research papers from peer-reviewed journals as well as sources like bioRxiv and medRxiv (websites where scientists can post non-peer-reviewed preprint papers). The research covers SARS-CoV-2 (the scientific name for the coronavirus), Covid-19 (the scientific name for the disease), and the coronavirus group. It represents the most extensive collection of scientific literature related to the ongoing pandemic and will continue to update in real time as more research is released."
The data set aims to accelerate scientific research that could fight the Covid-19 pandemic.
"The news: Today researchers collaborating across several organizations released the Covid-19 Open Research Dataset (CORD-19), which includes over 24,000 research papers from peer-reviewed journals as well as sources like bioRxiv and medRxiv (websites where scientists can post non-peer-reviewed preprint papers). The research covers SARS-CoV-2 (the scientific name for the coronavirus), Covid-19 (the scientific name for the disease), and the coronavirus group. It represents the most extensive collection of scientific literature related to the ongoing pandemic and will continue to update in real time as more research is released."
Thursday, March 5, 2020
Column: COVID-19 could kill the for-profit science publishing model. That would be a good thing; Los Angeles Times, March 3, 2020
Michael Hiltzik, Los Angeles Times; Column: COVID-19 could kill the for-profit science publishing model. That would be a good thing
"The current crisis has demonstrated the value of open access to research, as well as the drawbacks of secrecy."
"The current crisis has demonstrated the value of open access to research, as well as the drawbacks of secrecy."
Wednesday, June 6, 2018
When Scientists Develop Products From Personal Medical Data, Who Gets To Profit?; NPR, May 31, 2018
Richard Harris, NPR; When Scientists Develop Products From Personal Medical Data, Who Gets To Profit?
"If you go to the hospital for medical treatment and scientists there decide to use your medical information to create a commercial product, are you owed anything as part of the bargain?
That's one of the questions that is emerging as researchers and product developers eagerly delve into digital data such as CT scans and electronic medical records, making artificial-intelligence products that are helping doctors to manage information and even to help them diagnose disease.
This issue cropped up in 2016, when Google DeepMind decided to test an app that measures kidney health by gathering 1.6 million records from patients at the Royal Free Hospital in London. The British authorities found this broke patient privacy laws in the United Kingdom. (Update on June 1 at 9:30 a.m. ET: DeepMind says it was able to deploy its app despite the violation.)
But the rules are different in the United States."
"If you go to the hospital for medical treatment and scientists there decide to use your medical information to create a commercial product, are you owed anything as part of the bargain?
That's one of the questions that is emerging as researchers and product developers eagerly delve into digital data such as CT scans and electronic medical records, making artificial-intelligence products that are helping doctors to manage information and even to help them diagnose disease.
This issue cropped up in 2016, when Google DeepMind decided to test an app that measures kidney health by gathering 1.6 million records from patients at the Royal Free Hospital in London. The British authorities found this broke patient privacy laws in the United Kingdom. (Update on June 1 at 9:30 a.m. ET: DeepMind says it was able to deploy its app despite the violation.)
But the rules are different in the United States."
Tuesday, July 4, 2017
Louisiana considers radical step to counter high drug prices: Federal intervention; Washington Post, July 3, 2017
Carolyn Y. Johnson, Washington Post; Louisiana considers radical step to counter high drug prices: Federal intervention
"At [Louisiana’s health secretary Rebekah] Gee’s urging, Joshua Sharfstein, a professor of public health at Johns Hopkins University and a former Food and Drug Administration deputy commissioner, convened a meeting of health-policy specialists and economists. They advised that the state ask the federal government to intervene in a two-pronged approach: Gee should first ask the government to negotiate with a drug company and license a medication, in line with a recent recommendation by a committee from the National Academies.
At the same time, they advised Gee to pursue a harder-edged tactic, in case the voluntary approach did not work: Gee should ask the secretary of health and human services to invoke a century-old law that allows the government to use patents at a reasonable cost. The panel recommended a price as low as $1,000 per patient.
The law was used routinely in the 1950s and 1960s to make medicines available at lower prices. It was considered but not used during the anthrax attacks in 2001. It has been used by more than 10 government agencies or departments to lower the prices for patented inventions, including night-vision goggles for the Defense Department.
“The drug has been out for years, and we’re failing to provide it to the majority of people who have this infection,” Gee said. “We’re failing at our mission to improve the public health, and so just doing what we’re doing is not an option and we have to do better.”"
"At [Louisiana’s health secretary Rebekah] Gee’s urging, Joshua Sharfstein, a professor of public health at Johns Hopkins University and a former Food and Drug Administration deputy commissioner, convened a meeting of health-policy specialists and economists. They advised that the state ask the federal government to intervene in a two-pronged approach: Gee should first ask the government to negotiate with a drug company and license a medication, in line with a recent recommendation by a committee from the National Academies.
At the same time, they advised Gee to pursue a harder-edged tactic, in case the voluntary approach did not work: Gee should ask the secretary of health and human services to invoke a century-old law that allows the government to use patents at a reasonable cost. The panel recommended a price as low as $1,000 per patient.
The law was used routinely in the 1950s and 1960s to make medicines available at lower prices. It was considered but not used during the anthrax attacks in 2001. It has been used by more than 10 government agencies or departments to lower the prices for patented inventions, including night-vision goggles for the Defense Department.
“The drug has been out for years, and we’re failing to provide it to the majority of people who have this infection,” Gee said. “We’re failing at our mission to improve the public health, and so just doing what we’re doing is not an option and we have to do better.”"
Tuesday, March 14, 2017
Why the FDA hides the names of grocery stores that sell contaminated food; Washington Post, March 13, 2017
Caitlin Dewey, Washington Post; Why the FDA hides the names of grocery stores that sell contaminated food
"The SoyNut Butter and a related granola were sold in stores across the country, according to the Food and Drug Administration. It was also served in an untold number of child-care centers and schools.
The FDA does not specify, however, which stores, centers or schools — because that would violate its interpretation of an obscure trade secret rule...
In the case of releasing retailer lists during major outbreaks, the FDA has historically sided with business, ruling that such lists constitute “confidential commercial information” and thus should not be available for public consumption."
"The SoyNut Butter and a related granola were sold in stores across the country, according to the Food and Drug Administration. It was also served in an untold number of child-care centers and schools.
The FDA does not specify, however, which stores, centers or schools — because that would violate its interpretation of an obscure trade secret rule...
In the case of releasing retailer lists during major outbreaks, the FDA has historically sided with business, ruling that such lists constitute “confidential commercial information” and thus should not be available for public consumption."
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